Covid-19 Surveys & Studies

Past

United Kingdom - Attributes and predictors of long COVID

“At the population level, it is critical to quantify the burden of long COVID to assess its impact on the healthcare system and appropriately distribute resources. In our study, prospective logging of a wide range of symptoms allowed us to conclude that the proportion of people with symptomatic COVID-19 who experience prolonged symptoms is considerable, and relatively stable across three countries with different cultures.”

Published March 2021

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United States - SARS-CoV-2 infection and risk of clinical sequelae during the post-acute phase: a retrospective cohort study

“Our results confirm excess risk for developing clinical sequelae due to SARS-CoV-2 during the post-acute phase, including specific types of sequelae less commonly seen among other viral illnesses.”

Published March 2021

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United States - COVID Symptoms, Symptom Clusters, and Predictors for Becoming a Long-Hauler: Looking for Clarity in the Haze of the Pandemic

“The purpose of this study was to assess for symptoms at days 0-10 and 61+ among subjects with PCR-confirmed SARS-CoV-2 infection.”

Published March 2021

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United States - National Institute of Allergy & Infectious Disease study on Rapid implementation of a cohort for the study of post-acute sequelae of SARS-CoV-2 infection/COVID-19

“Among a cohort of participants enrolled in the post-acute phase of SARS-CoV-2 infection, we found many with persistent physical symptoms through 8 months following onset of COVID-19 with an impact on self-rated overall health”

Published March 2021

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Italy & France - University of Palermo’s Study on Molecular mimicry in the post-COVID-19 signs and symptoms

“We share our findings to prompt further studies assessing whether severe forms of COVID-19 could produce transitory or permanent damage in some vagal structure and whether this can, in turn, be responsible for the low vagal tone and the related clinical signs and symptoms.”

Published March 2021

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United States - University of Michigan study on Population-based estimates of post-acute sequelae of SARS-CoV-2 infection (PASC) prevalence and characteristics: A cross-sectional study

“The Michigan COVID-19 Recovery Surveillance Study is a population-based cross-sectional survey of a probability sample of adults with confirmed COVID-19 in the Michigan Disease Surveillance System (MDSS). Respondents completed a survey online or via telephone in English, Spanish, or Arabic between June - December 2020.”

Published March 2021

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Italy & France - University of Palermo’s Study on Molecular mimicry in the post-COVID-19 signs and symptoms

“We share our findings to prompt further studies assessing whether severe forms of COVID-19 could produce transitory or permanent damage in some vagal structure and whether this can, in turn, be responsible for the low vagal tone and the related clinical signs and symptoms.”

Published March 2021

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United States - National Institute of Mental Health & National Science Foundation Study on Persistence of symptoms up to 10 months following acute COVID-19 illness

“A subset of individuals experience persistent symptoms from 2 to more than 10 months after acute COVID-19 illness, particularly those who recall headache and absence of fever. In light of this prevalence, strategies for predicting and managing such sequelae are needed.”

Published March 2021

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United States- Onset, duration and unresolved symptoms, including smell and taste changes, in mild COVID-19 infections. A cohort study in Israeli patients

“This study aims to characterize longitudinal symptoms of mild COVID-19 patients for a period of six months, and potentially aid in disease management.”

Published February 2021

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United States - University of Washington’s Study on Sequelae in Adults at 6 Months After COVID-19 Infection

“COVID-19 symptom data were obtained at the time of acute illness or retrospectively recounted at a 30-day enrollment visit. A total of 234 participants with COVID-19 were contacted between August and November 2020 to complete a single follow-up questionnaire between 3 and 9 months after illness onset.”

Published February 2021

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Israel - Onset, duration and unresolved symptoms, including smell and taste changes, in mild COVID-19 infections. A cohort study in Israeli patients

“This study aims to characterize longitudinal symptoms of mild COVID-19 patients for a period of six months, and potentially aid in disease management.”

Published February 2021

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China - Jin Yin-tan Hospital’s Study on 6-month consequences of COVID-19 in patients discharged from hospital

“At 6 months after acute infection, COVID-19 survivors were mainly troubled with fatigue or muscle weakness, sleep difficulties, and anxiety or depression.”

Published January 2021

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Worldwide - Covid-19 Patient-Led Survey Results

“Patients with Long COVID report prolonged multisystem involvement and significant disability. Most had not returned to previous levels of work by 6 months. Many patients are not recovered by 7 months, and continue to experience significant symptom burden.”

Published December 2020

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Denmark - Oxford’s Long Covid in the Faroe Islands Study

“In this longitudinal study we present symptoms registered during the acute phase as well as long COVID, i.e. long-lasting COVID-19 symptoms, in patients from the Faroe Islands.”

Published November 2020

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United States - Dr. Bruce Patterson - Covid “Long Hauler” Study

“Using machine learning, they identified algorithms that allowed for accurate determination of chronic COVID and severe COVID immunotypes. The researchers also addressed the question of whether the immunologic profile represents an immune response indicative of prolonged or chronic antigenic exposure.”

Published December 2020

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United Kingdom - BMC Health Services Research “Long Covid” Study

Persistent symptoms after Covid-19: qualitative study of 114 “long Covid” patients and draft quality principles for services

Published December 2020

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United States - UW Medicine Covid-19 Study

The spike protein of SARS-CoV-2 can pass through the blood-brain barrier of mice. The protein likely causes the brain to release cytokines and spark neuroinflammation.”

Published December 2020

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Netherlands - Radboud University Medical Center Covid-19 Study

“A novel haemocytometric COVID-19 prognostic score developed and validated in an observational multicentre European hospital-based study.”

Published November 2020

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United States - UW Medicine Covid-19 Study

The spike protein of SARS-CoV-2 can pass through the blood-brain barrier of mice. The protein likely causes the brain to release cytokines and spark neuroinflammation.”

Published December 2020

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Netherlands - Radboud University Medical Center Covid-19 Study

“A novel haemocytometric COVID-19 prognostic score developed and validated in an observational multicentre European hospital-based study.”

Published November 2020

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Worldwide - COVID-19 “Long Hauler” Symptoms Survey Report

Published July 2020

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Switzerland - Acute Long Covid Study (French)

Published October 2020

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Current

United Kingdom / United States - Covid Personality Survey

Ongoing Research - Recruiting

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United Kingdom - Covidence Study

Ongoing Research - Recruiting

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United States - Covid INSPIRE Study

Ongoing Research - Recruiting

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United Kingdom - CoroNerve Study

Ongoing Research - Recruiting

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Worldwide - Long Covid Patient-Centric Genomic Biobank

Ongoing Research - Recruiting

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United Kingdom - Coverscan

Ongoing Research - Recruiting

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Worldwide - Long Haul Covid Survey

Ongoing Research - Recruiting

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Worldwide/United Kingdom- Coronagenes Study

Ongoing Research - Recruiting

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United Kingdom - Smell & Taste Loss Survey

Ongoing Research - Recruiting

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San Francisco, CA - Long-Term Impact of Infection with Novel Coronavirus

Ongoing Research - Recruiting

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Canada - Covid-19 Brain Study

Ongoing Research - Recruiting

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Barcelona, Spain - Long-term Effects of Covid-19 on the Cardiovascular System

Ongoing Research - Recruiting

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Worldwide - You & ME / Covid-19 Registry

Ongoing Research

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Worldwide - Clinical Trial for C.F.S / Post-Viral Fatigue (incl. “Long Haulers”)

Ongoing - Recruiting

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